Below are links to other societies, organisations and website that may be helpful to paediatric endocrinologists and diabetologists. The BSPED does not have responsibility for the content of the websites linked to from this page.
Endocrine Resources
Addisons Disease Self Help Group | The ADSHG is the support group in the UK and Ireland for people with Addison’s disease or adrenal insufficiency and their families, working to support its those with adrenal failure and to promote better medical understanding of this rare condition. |
ALD LIFE | ALD LIFE aims to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy, whether personally or medically. |
ASPED | Arab Society of Paediatric Endocrinology and Diabetes |
BritSPAG | The British Society for Paediatric and Adolescent Gynaecology |
British Thyroid Foundation | The British Thyroid Foundation is a charity dedicated to supporting people with thyroid disorders and helping their families and people around them to understand the condition. |
Child Growth Foundation | The Foundation is the UK's leading charity relating to children's growth |
CCLG Aftercure | Patient information on the late effects after treatment for childhood cancer survivors |
The Daisy Network | Patient support group for women with premature ovarian insufficiency |
Diabetes Insipidus Foundation | Support group |
DSD Families | Resources for professionals working with people with Disorders of Sex Development |
Endocrine Society | The Endocrine Society is dedicated to promoting excellence in research, education and clinical practice in the field of endocrinology. |
ESE | European Society of Endocrinology |
ESPE | European Society for Paediatric Endocrinology |
ESPU | European Society for Paediatric Urology |
Explain Me | Explain was developed as part of a project to improve communication between young people, their parents/carers and healthcare professionals in endocrine clinics. |
Hypoparathyroidism UK | HPTH UK is the only organisation dedicated to improving the diagnosis, prevention and treatment of hypoparathyroidism and other parathyroid conditions in the UK. |
International DSD Registry | Registry for DSD, CAH and Turner Syndrome. |
Intersex Society of North America | The Intersex Society of North America is a resource for people seeking information and advice about atypical reproductive anatomies |
Klinefelters Syndrome Association UK | This site exists to support all those affected by Klinefelter's Syndrome (KS). |
PES |
Pediatric Endocrine Society (formally the Lawson Wilkins Pediatric Endocrine Society). |
Pituitary Foundation |
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Prader-Willi Syndrome Association UK |
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RCPCH |
Leaflets created to inform people about the rare conditions being studied by the BPSU in a straightforward and lay-friendly manner. |
Scottish Paediatric Endocrine Group |
Scottish Paediatric Endocrine Group |
Silver Russell Syndrome |
The Child Growth Foundation's information leaflet on Silver Russell Syndrome |
Society for Endocrinology |
The Society for Endocrinology aims to promote the advancement of public education in endocrinology. |
Turner Syndrome Support Society |
The aim is to offer support & information to girls & adult women with Turner Syndrome, their families and friends. |
Verity |
Verity is a self-help group for women with polycystic ovary syndrome (PCOS). |
WHO growth database |
Global Database on Child Growth and Malnutrition |
You & your hormones |
You & Your Hormones is a website aimed at patients and the general public that provides accurate and reliable information on hormones and hormone-related conditions. |