Professional & Clinical Resources

Guidelines and Standards

The UK standards for Paediatric Endocrinology are below, followed by other guidelines and standards sorted into endocrine and diabetes.

Each patient should be considered as an individual in the context of their condition and other medication and therefore the readers' discretion is required in the application of their use of these guidelines and standards. Every effort has been made to ensure the factual accuracy of the contents but no liability can be accepted for any litigation, claims or complaints arising from the use of the guidelines and standards.

If you have a query or comment, or would like to raise a concern about any document on this page, please contact the BSPED Office who will ensure your message is passed to the BSPED Clinical Guidelines Officer and Clinical Committee.

Included on this page are:

BSPED Guidelines and Standards (guidelines produced for the BSPED)

Commissioned and developed by BSPED and reflect the Society's views on best practice for the majority of patients with that condition. 

BSPED Endorsed Guidelines and Standards

Produced by accredited national bodies (e.g. NICE, RCPCH, ACDC) of which BSPED are stakeholders. BSPED may have been involved in the development, but are not the original authors.

For BSPED endorsement of a guideline or standard please review the BSPED Clinical Guideline/Standard Endorsement Process. Authors of guidelines/standards are required to sign the BSPED Declaration of Interest form (definitions of conflicting interests are listed on the form).

Local Guidelines

The BSPED has not been involved in the development of these guidelines and takes no responsibility for the content. Please note local guidelines may vary between trusts.

UK standards for Paediatric Endocrinology

The UK standards for Paediatric Endocrinology were initially published in 2019 and have been updated in 2024 by the BSPED. They are endorsed by the Royal College of Paediatrics and Child Health. The standards apply to all children and young people aged 0-18 years with an endocrine condition. The aims of the standards are to reduce variability in care and to ensure that equitable services providing high quality, safe and effective care are available to all children and families across the UK. The standards are intended for healthcare professionals and for service commissioners to plan, deliver and quality assure paediatric endocrine services. Review date: January 2029.

 

Category Guideline Type Source Date of document Review date
Adrenal Insufficiency

Adrenal Insufficiency Consensus Guidelines

BSPED BSPED Nov 2022 Nov 2025
Bone

Recommendation of Endocrine & Bone Monitoring in Duchenne Muscular Dystrophy (DMD) in the UK NorthStar Network

Endorsed DMD Care UK Oct 2023 Oct 2026
Bone

Adrenal Insufficiency in DMD / Puberty and Testosterone Treatment in DMD - Patient Information Leaflets

Endorsed DMD Care UK Aug 2020 Aug 2023
DSD

UK Guidance on the Initial Evaluation of an Infant or an Adolescent with a Suspected Disorder of Sex Development

Endorsed Society for Endocrinology April 2021 April 2024
DSD

Clinical Standards for Management of an Infant or Adolescent presenting with a suspected differences of sex development (DSD)

BSPED BSPED Nov 2017 2022 (Following review of Paediatric Endocrinology Specifications for DSD)
Growth

BSPED UK Consensus National Guidelines for Sex Hormone Priming for Growth Hormone (GH) Stimulation Testing

BSPED BSPED Apr 2021 April 2024
Growth

Shared care guidelines: Paediatric use of Recombinant Human Growth Hormone (r-hGH)

BSPED BSPED Dec 2023 Jan 2027
Growth

Recommendations for rh IGF-1 in Children with SPIGFD

BSPED BSPED May 2024 May 2027
Growth

Recommendations for IGF-1 Therapy in Children with Severe Insulin Resistance Syndromes

BSPED BSPED May 2024 May 2027
Growth Growth Monitoring for Children with Chronic Kidney Disease Endorsed BSPED/BAPN/PRING March 2024 March 2027
Growth BSPED recommendations for the initial clinical assessment, investigation and genetic testing of children with growth failure and/or short stature BSPED BSPED SIG Nov 2022 Nov 2026
Growth Clinical standards for growth assessment and referral criteria for children with a suspected growth disorder: BSPED position statement BSPED BSPED SIG Sept 2022 Sept 2025
Growth Clinical Standards For GH Treatment Of Growth Disorders Excluding GHD 19122023 BSPED BSPED SIG Dec 2023 Dec 2026
Growth Clinical Standards for GH treatment of GH deficiency (GHD)
in Childhood and Adolescence
BSPED BSPED SIG Aug 2022 Aug 2027
Puberty / Gonads Hormone Supplementation for Pubertal Induction in Girls BSPED BSPED June 2022 June 2025
Puberty / Gonads Testosterone Replacement Guidelines  BSPED BSPED August 2024 August 2027
Puberty / Gonads Shared care guidelines: Use of Gonadotrophin Releasing Hormone (GnRH) Agonists BSPED BSPED Apr 2021 Apr 2025
Puberty / Gonads GnRH Analogue Stimulation Testing to Investigate Precocious Puberty BSPED BSPED Jul 2021 July 2025
Oncology CCLG: Rare Endocrine Tumour guidelines: Craniopharyngioma Endorsed CCLG 2021 2026
Oncology CCLG: Rare Endocrine Tumour guidelines: Idiopathic thickened pituitary stalk (iTPS) and/or idiopathic central diabetes insipidus (CDI) Endorsed CCLG 2021 2026
Turner Syndrome Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome Endorsed ESPE/International Consensus 2017 2021

Local/ Other Endocrine Guidelines and Useful Resources

These guidelines are local/other endocrine guidelines which have been made available to BSPED members. The BSPED have not been involved in the development of these guidelines and take no responsibility for the content. Please note local guidelines may vary between Trusts.

If a local trust wishes to publish their guidelines on the BSPED website, please email the BSPED Office ([email protected]) and we will put you in touch with our Clinical Guidelines Officer.

Category Guideline Type Source Date of document
Adrenal

The Investigation of suspected Paediatric Cushing’s Syndrome

Supported Barts and the London School of Medicine April 2021
Puberty/Gonads

Protocol for Induction of Puberty with Gonadotropins in Adolescent Males with GnRH or Gonadotropin Deficiency

Supported QMUL/Barts/UCLH/Alder Hey April 2022
Thyroid

Paediatric Graves Disease Guildeline 2022

Supported British Thyroid Association Guideline management of Paediatric Graves disease 2022
Hyperinsulinism

Management of Congenital Hyperinsulinism 2023

Supported UK national consensus 2023

 

 

Guideline Type Source Date of document /last updated Review date

BSPED Guideline for the Management of Children and Young People under the age of 18 years with Diabetic Ketoacidosis - 2021

BSPED  BSPED  Nov 2021  Nov 2024

DKA Calculator

BSPED BSPED Nov 2021 Nov 2024

DKA Integrated Care Pathway - 2021

BSPED BSPED Nov 2021 Nov 2024

Diabetes (type 1 and type 2) in children and young people: diagnosis and maagement

Endorsed NICE Dec 2020 May 2023

 

ACDC Endorsed Diabetes Guidelines

Please refer to the ACDC website for Endorsed Guidelines for the most up to date diabetes guidelines listed below.

Guideline Type Source
Executive summary - A Practical Approach to the Management of Type 2 Diabetes in children and young people under 18yrs Endorsed ACDC/BSPED
Care of the Well Child-Newly Diagnosed with Type 1 Diabetes Endorsed ACDC/BSPED
Sick day guideline executive summary v4 Endorsed ACDC/BSPED
Sick day guideline Main V4 Endorsed ACDC/BSPED
Management of Hypoglycaemia in Children and Young People with Type 1 Diabetes Endorsed ACDC/BSPED
A Practical Approach to the Self Management of Diabetes As An Inpatient for Children and Young People Under 18 years Endorsed ACDC/BSPED
A Practical Approach to the Management of Continuous Glucose Monitoring (CGM) / Real-Time Flash Glucose Scanning (FGS) in Type 1 Diabetes Mellitus in Children and Young People Under 18 years Endorsed ACDC/BSPED
A Practical Approach to the Management of Steroid, Chemotherapy or Transplant Induced Hyperglycaemia or Diabetes in Children and Young People Under 18 years in the Acute or Inpatient Setting Endorsed ACDC/BSPED
Dexcom G4 CGM Training Leaflet for Healthcare Professionals and Patients Endorsed ACDC/BSPED
Dexcom G5 CGM Training Leaflet for Healthcare Professionals and Patients Endorsed  ACDC/BSPED
Dexcom G6 CGM Training Leaflet for Healthcare Professionals and Patients Endorsed ACDC/BSPED
Medtronic 640G Training Leaflet for Healthcare Professionals and Patients Endorsed ACDC/BSPED
Libre FGS Training Leaflet for Healthcare Professionals and Patients Endorsed ACDC/BSPED
Care of children under 18 years with Diabetes Mellitus undergoing Surgery - currently being updated Endorsed ACDC/BSPED
Executive Summary: A Practical Approach to the Management of Continuous Glucose Monitoring (CGM) / Real-Time Flash Glucose Scanning (FGS) in Type 1 Diabetes Mellitus in Children and Young People Under 18 years Endorsed ACDC/BSPED
Practical Management of Hyperglycaemic Hyperosmolar State (HHS) in children Endorsed ACDC/BSPED
Management of Type 1 Diabetes Mellitus during illness in children and young people under 18 years (Sick Day Rules) Endorsed ACDC/BSPED
Executive Summary- Management of Type 1 Diabetes Mellitus during illness in children and young people under 18 years (Sick Day Rules) Endorsed ACDC/BSPED
Patient Advice for Management of Type 1 Diabetes Mellitus during illness in children and young people under 18 years (Sick Day Rules) Endorsed ACDC/BSPED

Chaperone documentation for clinical notes (provided by Birmingham Children's Hospital):